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PUBLICATIONS AND RESOURCES

References and Links to Papers

 2023

QUOKKA Quick Summary Project 1: What is the best way to measure the health of kids?

Comparative Psychometric Performance of Common Generic Paediatric Health-Related Quality of Life Instrument Descriptive Systems: Results from the Australian Paediatric Multi-Instrument Comparison Study

Collecting Paediatric Health-Related Quality of Life Data: Assessing the Feasibility and Acceptability of the Australian Paediatric Multi-Instrument Comparison (P-MIC) Study

The RETRIEVE checklist for studies reporting the elicitation of stated preferences for child health related quality of life

Australian Paediatric Multi-Instrument Comparison (P-MIC) Study: Technical Methods Paper Version 4, Data Cut 3

 2022

Development of a Checklist for Studies Reporting the Elicitation of Stated Preference Values for Child Health Related Quality of Life

Australian Paediatric Multi-Instrument Comparison (P-MIC) Study: Technical Methods Paper Version 3, Data Cut 2

Australian Paediatric Multi-Instrument Comparison (P-MIC) Study: Technical Methods Paper Version 1, Data Cut 1

Systematic Review of Conceptual, Age, Measurement and Valuation Considerations for Generic Multidimensional Childhood Patient-Reported Outcome Measures

Preference Elicitation Techniques Used in Valuing Children's Health-Related Quality-of-Life: A Systematic Review

Are We Agreed? Self-Versus Proxy-Reporting of Paediatric Health-Related Quality of Life (HRQoL) Using Generic Preference-Based Measures: A Systematic Review and Meta-Analysis

How are Child-Specific Utility Instruments Used in Decision Making in Australia? A Review of Pharmaceutical Benefits Advisory Committee Public Summary Documents

A Systematic Review of International Guidance for Self-Report and Proxy Completion of Child-Specific Utility Instruments

International guidelines for self-report and proxy completion of paediatric health-related quality of life measures: a protocol for a systematic review

2021

Do child QALYs = adult QALYs? Five reasons why they might not

Psychometric Performance of HRQoL Measures: An Australian Paediatric Multi-Instrument Comparison Study Protocol (P-MIC) - PubMed

Value sets for EQ-5D-Y: The current state of play and remaining issues

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